‘Co-production‘, ‘participation’ and ‘involvement‘ all help ensure that those who use services play a role in their design. This has been shown to enhance delivery, acceptability and ultimately effectiveness.
Research methodologies and outputs are similarly improved through the involvement of those who are otherwise usually research ‘subjects’, for example in tdeveloping topics , methods adn tools. Moreover, it allows a re-balancing of the potential ‘them and us‘, power, dynamic within research.
Examples of my participation work include:
- I evaluated the involvement of parents of disabled children in the Cumbria Early Intervention Pilot to help explain how this had assited in shaping the work and priorities. My recommendations covered suggestiosn from family carers on how to build on this
- As part of my evaluation of the OSN project, I examined and made recommednations around improving the involvement and employment of people with learning disabilities.
- I recruited and trained a group of young people who had long term health conditions to collaborate and work as advisers to academics in the University of East London and the NHS. The young people shared their ideas on how health services could improve for other children and young poeple like them.
- I co-produced tools and questions for the evaluation of the Our rights Our Voice, a project to inform disabled children and young people about their health rights, run by the Council of Disabled People.
- I supported a group of young people to co-produce evaluation methods and tools to assess the impact of a new sex education programme created by the Sex Education Forum. This toolkit was also co-produced and aimed to promote awareness of gender stereotypes and sexual exploitation among young people.
- I co-produced outcome indicators with the Childhood Bereavement Network practitioners, children and young people.
- For the Lambeth Early Action Partnership, I co-produced evaluation indicators, tools and questions with local parents, to ensure these were more useful and acceptable.